Tuesday, April 12, 2005
Going swimmingly
Everything went smooth as silk on monday. We stayed home until the nurses called to say we'd got a room and it turned out to be a private one right by the nurses station (though if a bone marrow transplant kid comes in, we'll be moved...) There's a lovely view of flowers out the window and I get cell phone reception!
Jacob's already had the 24 hour paclitaxel and the first dose of cisplatin; just four days of that to go. I can tell it's getting to him some because he's phenomenally grouchy - in direct contrast to his general mood the last week or so of sunny good humor. Even so he's eating fine (yes, decadron.)
Next time, if there is a next time, we may be able to do it outpatient: just go to the day hospital for the chemo infusion itself, and then do the rest of the meds and hydration at home. Evidently they can fit him with a IV pump in a back pack. The only problem with that picture is the long and winding road between home and here.
I'm really appreciating being back at Packard, with all the wonderful people taking car of us. Here are a few of them
Dr. Dennis Kuo

Nurses, Merian, Wanda and Mardi and Melissa



More soon.
Jacob's already had the 24 hour paclitaxel and the first dose of cisplatin; just four days of that to go. I can tell it's getting to him some because he's phenomenally grouchy - in direct contrast to his general mood the last week or so of sunny good humor. Even so he's eating fine (yes, decadron.)
Next time, if there is a next time, we may be able to do it outpatient: just go to the day hospital for the chemo infusion itself, and then do the rest of the meds and hydration at home. Evidently they can fit him with a IV pump in a back pack. The only problem with that picture is the long and winding road between home and here.
I'm really appreciating being back at Packard, with all the wonderful people taking car of us. Here are a few of them
Dr. Dennis Kuo

Nurses, Merian, Wanda and Mardi and Melissa



More soon.