Tuesday, October 24, 2006
Happy Birthdays
It was a very difficult week in some ways, but many great things happened in it:
Jacob had his fourteenth birthday - his third since he was diagnosed,
his cousin's helped him blow out the candles and Ellie was here for it,
The garden is in,
And we got to celebrate the 78th birthday of the friend who built it!
Jacob had his fourteenth birthday - his third since he was diagnosed,
his cousin's helped him blow out the candles and Ellie was here for it,
The garden is in,
And we got to celebrate the 78th birthday of the friend who built it!
Monday, October 16, 2006
Arrrrrrrgh!
Two steps forward and one step back.
Specifically, the pseudomonas lung infection is back, and therefore, the Cipro and trobramycin antibiotics are back.
I really worried about Jacob's reaction to the news, because he's been at very low ebb emotionally lately, but he took it like a trouper.
On the other hand, tomorrow we switch from decadron to hydrocortisone, and we are still tapering, just more slowly.... In another month he should be down to zero steroids.
Specifically, the pseudomonas lung infection is back, and therefore, the Cipro and trobramycin antibiotics are back.
I really worried about Jacob's reaction to the news, because he's been at very low ebb emotionally lately, but he took it like a trouper.
On the other hand, tomorrow we switch from decadron to hydrocortisone, and we are still tapering, just more slowly.... In another month he should be down to zero steroids.
Friday, October 13, 2006
Pumpkin Time Again
Tuesday, October 10, 2006
New Garden
An angel has appeared in the form of our neighbor-in-law, Wes, who has stepped in to make our garden happen:
This man is incredible!
Now I just need to order the soil! anyone who know where to order organic soil let me know!
This man is incredible!
Now I just need to order the soil! anyone who know where to order organic soil let me know!
Friday, October 06, 2006
Welcome Lilibell
We are thrilled to welcome Lillibell to this planet and wish her parents Lena and Jaron many hours of sleep... sometime soon!
Wednesday, October 04, 2006
No news is good news(?)
There just hasn't been much to report on the home front. Jacob is getting better, but it is so slow! We've continued to taper the decadron to 2 mg a day. By next monday he'll be down to 1 mg after which he can go down to prednisone, and taper the rest of the way from there.
It will still take some weeks for the effects to wear off. He's going to school about one period a day. He can't see well enough to read because the drugs have distorted his corneas, though we hope that will be correctable with glasses, and eventually go away all together.
Alex and Jacob experimented with home-made "personal protection masks" `a al Stanley Bender, who was a denizen of Olympia Washington, rumored to have inspired the character "Bender" in Futurama, though that is a different story.
We had a beautitful dinner at Jennifer and Marks. Here Young and Addy watch Mark cook
Sparky got his cone off:
And we got to see Jessica and Alex before they jetted off for Matt and Holly's wedding.
It will still take some weeks for the effects to wear off. He's going to school about one period a day. He can't see well enough to read because the drugs have distorted his corneas, though we hope that will be correctable with glasses, and eventually go away all together.
Alex and Jacob experimented with home-made "personal protection masks" `a al Stanley Bender, who was a denizen of Olympia Washington, rumored to have inspired the character "Bender" in Futurama, though that is a different story.
We had a beautitful dinner at Jennifer and Marks. Here Young and Addy watch Mark cook
Sparky got his cone off:
And we got to see Jessica and Alex before they jetted off for Matt and Holly's wedding.
