Wednesday, June 28, 2006
San Francisco Carnaval May 28th
I've been waiting to get some photos of the San Francisco Carnaval before I posted about it. My camera batteries died after one picture:

Jacob's school Nueva fielded an astounding steele drum band, led by Jim Munzenrider, riding a cool flatbed semi, and a band of Trinadian Mas players, including Jacob, led by Liza Raynal and Tracie Mastronicola.
Luckily, I found a bunch of pix on Flickr:
This week surf camp.

And Ellie is here!


Jacob's school Nueva fielded an astounding steele drum band, led by Jim Munzenrider, riding a cool flatbed semi, and a band of Trinadian Mas players, including Jacob, led by Liza Raynal and Tracie Mastronicola.
Luckily, I found a bunch of pix on Flickr:
This week surf camp.

And Ellie is here!

Thursday, June 15, 2006
All over it
Jacob finished the last of his IV antibiotics as an out-patient in the clinic yesterday, and his nurse, Diep, came in to remove his PICC line. He had the PICC (peripheral intravenous catheter - like a mini hickman or broviac in his arm) placed while he was in intensive care after having five IVs fail within 24 hours.
Needless to say, Jacob could hardly wait, and when she told him he could pull it out himself he just yanked and out came the first 20 cm of tubing. She screamed "AAAAAH, I wasn't ready!" But it was too late, so they went ahead and pulled the other half out.
So not only did he get free, but he got to flip out Diep. Score!
Afterwards we went to the beach for a formal portrait session with Tammy Trejo and her assistant Trevor. It was an amazing experience, and Jacob was climbing the cliffs between shots.
Needless to say, Jacob could hardly wait, and when she told him he could pull it out himself he just yanked and out came the first 20 cm of tubing. She screamed "AAAAAH, I wasn't ready!" But it was too late, so they went ahead and pulled the other half out.
So not only did he get free, but he got to flip out Diep. Score!
Afterwards we went to the beach for a formal portrait session with Tammy Trejo and her assistant Trevor. It was an amazing experience, and Jacob was climbing the cliffs between shots.
Tuesday, June 13, 2006
It's a Mystery
We're home. One more dose of IV antibiotics in the day hospital tomorrow and (hopefully) we'll shut the book on this little episode.
Jacob was actually discharged from the hospital around noon yesterday, but since he had an MRI scheduled in the evening, we hung around and went to see X-Men III. I liked it, no matter what anyone says. And Jacob made it through the MRI was no re-takes, meaning he held still for about 45 minutes, a significant feat.
Initial results on the MRI look good - more radiation-induced enhancements, but not, apparently, tumor.
Exactly what happened is a mystery. The pneumonia didn't look bad enough to cause such severe septic shock, especially when nothing grew out on the cultures.
Anyway, he's on his feet and cleared for surf camp week after next, and the rest of the summer's activities, though he's still pretty tired.
At least we got an extra visit with Ellie. She flew out as soon as she heard Jacob was sick. Young just took her to the airport to go back to Philly. It was so good to have her and Alex here.
We had visits from Christine Falsetti and Letty that meant a lot to us. And we said a last farewell at our clinic appointment today to Jacob's doctor, Dennis Kuo, who's moving up and on: a newly married man and newly minted attending/prof at Columbia. Thank you Dennis, for everything.

Jacob was actually discharged from the hospital around noon yesterday, but since he had an MRI scheduled in the evening, we hung around and went to see X-Men III. I liked it, no matter what anyone says. And Jacob made it through the MRI was no re-takes, meaning he held still for about 45 minutes, a significant feat.
Initial results on the MRI look good - more radiation-induced enhancements, but not, apparently, tumor.
Exactly what happened is a mystery. The pneumonia didn't look bad enough to cause such severe septic shock, especially when nothing grew out on the cultures.
Anyway, he's on his feet and cleared for surf camp week after next, and the rest of the summer's activities, though he's still pretty tired.
At least we got an extra visit with Ellie. She flew out as soon as she heard Jacob was sick. Young just took her to the airport to go back to Philly. It was so good to have her and Alex here.
We had visits from Christine Falsetti and Letty that meant a lot to us. And we said a last farewell at our clinic appointment today to Jacob's doctor, Dennis Kuo, who's moving up and on: a newly married man and newly minted attending/prof at Columbia. Thank you Dennis, for everything.

Friday, June 09, 2006
Things are Looking Up
Jacob was released from the PICU this afternoon, and we are in a regular room up on the 3rd floor.
You wouldn't know this was the same kid that staggered into the ER wednesday night. He's the full metal Jacob, appetite and all.
Maybe we'll get out tomorrow or Sunday.
Jacob was really sick when we came in Wednesday evening. Its amazing to see how he's sprung back. We are so lucky that to be here at Packard. The doctors and nurses have been beyond excellent.
You wouldn't know this was the same kid that staggered into the ER wednesday night. He's the full metal Jacob, appetite and all.
Maybe we'll get out tomorrow or Sunday.
Jacob was really sick when we came in Wednesday evening. Its amazing to see how he's sprung back. We are so lucky that to be here at Packard. The doctors and nurses have been beyond excellent.


