Sunday, May 29, 2005
It's getting rough
As the doctors warned he probably would be, Jacob's now neutropenic and spiked a fever during the night, so he's back on antibiotics, blood cultures and chest xrays (which they come and take right in the room!)
His pain and nausea from the mucusitis are getting steadily worse. He has a PCA pump that give him a constant dose of pain meds with button he can push to get extra when needed. They've been raising the dose regularly, and he's able to sleep some, but Young and I are trading off nights and days because we can't sleep while taking care of him.
He's still thrrowing up a lot even though he isn't taking anything by mouth and between the medications, blood transfusions, and TPN (total paraenteral nutrition) he's got five IV pumps on his pole, so the odds of one of them beeping is pretty high.
Yesterday Ellie was able to get him moving.
He played Monopoly with Letty and Alex and took a nap before his friend Wes and Wes' parents, Tammy and Grant, visited.
I doubt he'll be up for visitors today though.
His pain and nausea from the mucusitis are getting steadily worse. He has a PCA pump that give him a constant dose of pain meds with button he can push to get extra when needed. They've been raising the dose regularly, and he's able to sleep some, but Young and I are trading off nights and days because we can't sleep while taking care of him.
He's still thrrowing up a lot even though he isn't taking anything by mouth and between the medications, blood transfusions, and TPN (total paraenteral nutrition) he's got five IV pumps on his pole, so the odds of one of them beeping is pretty high.
Yesterday Ellie was able to get him moving.
He played Monopoly with Letty and Alex and took a nap before his friend Wes and Wes' parents, Tammy and Grant, visited.
I doubt he'll be up for visitors today though.
# posted by Ann @ 7:20 AM 
